Resources for Living with Dementia

Dementia is a progressive disease. To help you navigate these changes in symptoms and behavior as the disease progresses, we have gathered information on long-term dementia care planning, navigating behavior and dementia symptoms and available engagement activities for patients and caregivers.

Future Planning, Safety and Wellness

Learn about legal and financial planning, creating an environment to reduce stress and improve independency and other resources for patient and caregiver wellness.

Navigating Dementia Symptoms

Changes in symptoms and behavior can be expected with a dementia diagnosis. Adapting your environment to navigate these changes can help reduce stress for the caregiver and patient and increase independence.

Support and Engagement

It takes a team of caregivers and health care professionals to provide the best dementia care. We provide educational and supportive resources for patients, families and health care professionals.

Upcoming events

Oct

Externally-Led Patient-Focused Drug Development Meeting on Lewy Body Dementia

The Lewy Body Dementia Association in collaboration with the Alzheimer’s Association is bringing the dementia with Lewy bodies community together for the first-ever Externally-Led Patient-Focused Drug Development Meeting. Patient-Focused Drug Development meetings give the U.S. Food and Drug Administration and other key stakeholders, including medical product developers, health care providers, federal agencies, an important opportunity to hear directly from patients, their families, care partners and patient advocates about the symptoms that matter most to them, the impact the disease has on their daily lives and their experiences with currently available treatments.

Oct

Grief and Loss Support Group

The Grief and Loss Support Group is a free peer and professionally led group focusing on navigating grief in the later stages of caregiving and after.

Nov

Lewy Body Dementia Support Group

Join our experts in dementia care for encouraging discussion surrounding the impact of Lewy body dementia (LBD) in a supportive and informative environment with others who are living with LBD or caring for someone with LBD.

View all events